Last week, I had my three-month mast cell check up. Here are my top four accomplishments/signs of progress since my last visit:
- No ER visits. Technically, I broke this streak three days after my checkup. I am quickly learning what my triggers are (lemon cupcakes, Cascade detergent, stupidity…) and how to pound Benadryl at the first sign of a reaction.
- I can sing Adele without triggering anaphylaxis anymore. Also technically, not true. I TRY to sing Adele, and my lungs and dogs hate me for it.
- I can shower without turning into a red blimp and passing out, which is not a fun way to start any day, but especially workdays. The alternative, not showering, is frowned upon.
- I found pants that I’m not allergic to. Like not showering, the alternative is frowned upon.
When I was diagnosed, my doctor said it usually takes 4-5 years of prescription and supplement trials for an MCAS patient to discover their optimal treatment plan. Every patient’s response is different, which compounds the frustration and isolation.
This is the point where I have to remind people even the best treatment won’t make me normal. It’s okay; I made peace with this reality in kindergarten.
My goal is a more stable, comfortable quality of life. I try to remind myself that progress is not linear, but patience is hard. I worry about my family and friends losing patience too. And then, I remind myself not to worry. Because, for all we know, the zombie apocalypse could happen tomorrow.
So, what accomplishments are you celebrating this month?