About Keeya

Keeya and her two poodles
Keeya and her two poodles

Living with mast cell activation syndrome (MCAS) is a truly an isolating experience, not only because it’s debilitating, but it is extremely difficult to understand. MCAS is complicated and unique to each individual. My goal is to raise awareness about MCAS, chronic illness, and disability through humor.

I was diagnosed with MCAS in December 2015 after five abnormal mast cell test results and a lifetime of symptoms. I rely on medications and supplements to block or reduce the ridiculous amounts of chemical mediators released by my mast cells. I spend most of my time in solitary confinement (even pre-pandemic!) to minimize my exposure to triggers.

I also deal with the following conditions often associated with MCAS.

MCAS Remission

I am currently in remission of mast cell activation syndrome (MCAS) taking doxycycline, in addition to a basic mix of first line treatment. Unfortunately, every patient is different, so my treatment is unlikely to put most patients into remission. However, my remission has demonstrated how mast cell activation may be underappreciated when it comes to Ehlers-Danlos syndrome (EDS) and dysautonomia. My MCAS treatment has eliminated my symptoms of EDS and dysautonomia. Learn more about my remission:

My latest interview

Additional interviews

Support my work

Thank you Ann K., Tamsyn M., Stephanie J., Kathryn R., Kelly M., Jenna and Ben M., Deserae F., Jocelyn B., Alissa H., Kay C., Karen S., Hayden W., Elizabeth T., KW H., Athena D., Brianna, Pam, Melissa K., Martine S., Briana M., Alex D., Amy H., Rebecca R., and Heather G. for supporting this blog on Patreon! I rely on patrons to help me pay for this blog, captioning, graphic design software and other tools–it’s not free! You can become a patron for as little as $1/month and get access to patron-only posts about my treatment.

Support my work

All content contained on this web page is copyrighted. Feel free to share direct links, but please ask if you’d like to use text or a photo. Feel free to share my social media graphics, but please tag me in the post.

Contact me at hellsbellsandmastcells@gmail.com.