Before you judge my dog’s birthday party

Last month, my oldest toy poodle, Quixote turned TEN years old! Quixote is my first dog and has boldly taught me everything I know about poodles. He is a ruthless, but effective physical therapist. He forces me to socialize in hopes of scoring treats from strangers.

Of course, I had to spoil him with the perfect gift.

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A Charmin Forever Roll! A 12” roll of toilet paper, one of Quixote’s favorite vices. At first, I wanted to order the Forever Roll for myself. Charmin offers a money-back guarantee: Go up to one month before changing your roll. As someone who endured two colonoscopies in one year, I feel like that’s a bad business plan. My mast cells love a challenge. Then I realized my blog readers would much rather see pictures of my poodle than hear about how much I pooped in a month.

Quixote’s birthday serendipitously fell on the same day as his weekly agility class, so I also threw him a birthday party. There were hats, treats, and party favors.

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I worried these Facebook photos might undermine the seriousness of my health challenges. I try not to care what people think, but unfortunately image does matter when you’re of the precipice of crowdfunding.

I know a lot people of people think dog birthday parties are ridiculous. In fact, some people believe all birthday parties are ridiculous. I have a couple words for these people:

  1. Don’t steal my joy
  2. Prepare to feel like an asshole

First of all, it cost almost nothing. You better believe I collected every half-chewed stream of toilet paper and place them in a bag by my toilet. The mini hats were on clearance, because they look absurd on humans, and the lottery tickets technically made money. The balls were less than a dollar, even though Boost the Aussie thinks they’re worth a million.

Second, I miss celebrating birthdays. In fact, I miss celebrating all occasions with others. Because of MCAS, I usually spend my birthdays and Christmas alone. I can’t go to restaurants or parties with friends and family anymore. At the same time, I need celebration more than ever to offset my health challenges. Right now, my life just feels like a series of fights and losses. Quixote’s birthday was the perfect opportunity to share joy in a safe space. Feel like a jerk, yet?

Furthermore, I’m allergic to men, babies, and baby-making. I cannot imagine how many ways childbirth would destroy my body, nor how I would take care of children when I can barely care for myself. Plus, MCAS appears to have a genetic component. Instead of wallowing in my fear that I may never be able to have kids, I am focusing on the family I do have, even if it’s not human.

Finally, my dog has helped me and continues to help me get through hard times. At first glance, his help appears self-serving. Quixote keeps me on a strict schedule of meals, bathroom breaks, and exercise. He is the reason I get up in the morning and the reason I go outside. He is the reason I regained strength in my body. He is the reason I learned how to ask for help when I need it. He is the reason I keep fighting.

P.S. I am honored to have been nominated as a WEGO Health Awards Hilarious Patient Leader. If you haven’t already, please endorse me to raise awareness for mast cell disease, EDS, and POTS!

 

Why I made an encouragement board instead of a vision board

Every January, I make a vision board. To be honest, I enjoy the craft portion of the project most. A vision board is basically a pretentious collage that makes me sound like I have my shit together. It’s supposed to convey your dreams and leverage the law of attraction to make them happen. Yet, I never put a hospital on my vision board, but I can’t seem to stay out of one.

This year I am forgoing the traditional vision board for three reasons:

1. I am overly ambitious; my body is not

Before vision boards, I wrote resolutions. For example, here are my New Year’s resolutions from when I was 15 years old:

  • No chocolate except for special occasions
  • Find a volunteer job
  • Fix my many social problems or just shut up when necessary
  • Save $150 a month
  • Journal 3 times a week
  • Keep my face clear
  • Do all the other stuff I can’t think of right now

Well, that pretty much covers it. I was not a cool 15-year-old and I did not get more reasonable about my goals with age. I still eat chocolate every day and my face is usually dotted with hives. Let’s not even discuss the social problems. For the record, I did get the volunteer job… AT A HOSPITAL. These days I’m lucky if I can even keep my paying job. Vision boards and resolutions alike are loaded with guilt and regret.

2. The universe misinterprets my visions

In case you missed it, read last year’s warning about vision boards.

3. My friend refused to participate in our vision board tradition this year

Technically, we’ve only made them together once, but since my mast cells forbid all of my other traditions, it’s officially our thing. Maybe she refused this year because last year she was a little too scissor-happy with the yoga magazines and now feels guilty. Or maybe it’s because when we craft, I try to work “modge podge” and “she shed” into the conversation every 10 minutes, because I think it’s hilarious. She reminds me it’s actually called “mod podge” and I become more persistent. MODGE PODGE.

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This year, I decided I am making an encouragement board instead. Yes, that does sound even more nauseating than a vision board. Yes, a unvision board would be way more fun to make. (A unvision board is a collage of things you wish you could unsee. Yes, I totally made that up.) But after another year of pursuing the same dreams, getting knocked down and beat up, and feeling totally out of control, I need an encouragement board.

This past year, my friends and readers have kept me going. When I was in the hospital, your encouragement gave me strength to keep fighting and hope that I would recover. Oftentimes, I didn’t feel like writing, but the messages of support reminded me my writing helps people laugh and feel less alone. I dug up these messages time and time again when I felt low. Finally, it occurred to me to print these messages and make a collage.

Here’s what else my encouragement board entails:

  • A 11”x14” foam board
  • Scrapbook paper for the background
  • Inspirational quotes
  • Magazine clippings
  • MODGE PODGE (use doubled sided tape if you react)

Chances are you don’t have a blog and dozens of comments feeding your ego. However, I bet if you shared your dreams on social media, you’d also receive encouragement. Maybe from people you didn’t expect. And you can always print this out:

I BELIEVE IN YOU! YOU ARE AWESOME! – Hell’s Bells and Mast Cells

The Christmas cards are stacked against me

I’m not feeling the holiday spirit this year. Maybe it’s because the hospital almost killed me last month and still gifted me a $2k bill. Maybe it’s because my head is a ticking CSF leak time bomb and my neurologist says I will probably need brain surgery. Maybe it’s because my right kidney is still angry from last month’s contrast dye and throws a tantrum every time I drink water.

Or maybe it’s because Shutterfly sent me envelopes that smell like butt.

For the past decade, I’ve sent at least 50 Christmas cards each year. In the hospital, I swore I was taking this year off. However, a week later, I was invited to participate in a holiday card exchange for people with mast cell disease. I’m a sucker for fellow MCAS warriors, so I loaded up on steroids, put sweaters on my dogs, and trekked outside in the snow. The photos were adorable, so I ended up ordering 50 cards per usual.

As soon as my cards arrived in the mail, I set up my workshop: pens, stickers, and stamps. I was admiring my new cards, when it hit me. Not a chemical smell, nor a poop smell, but a foul butt smell. I put an envelope to my nose, and one whiff confirmed these envelopes had been stored in a sweaty butt warehouse for the past year. Unfortunately, by the time I moved them outside, my lungs were burning.

The only thing worse than getting sick from your own Christmas cards is getting all your chronically ill friends sick from your Christmas cards. I want to be known in the MCAS community as a great blogger, not the Christmas card killer. Again, I have ordered cards for over a decade, and I’ve never had this problem. Why this year?

Not even the Minnesota winter air could refresh the butt envelopes sitting on my patio. I waited two weeks for Shutterfly to send replacement envelopes. In past years, I would have been more patient. However, as a chronically ill person, I cannot crank out cards like I used to. Everything takes longer.

I considered sending the butt envelopes to my friends and family without mast cell disease anyway. I could just add “This is what my 2018 smelled like. Merry Christmas!” However, I usually I can smell things normal people can’t. So, my message would probably add further confusion and evidence that I am the most awkward person in their life.

As the Christmas deadline grew near, the pressure to finish my cards and my crabbiness increased. I began publicly proclaiming everyone would be receiving scent free deodorant for Christmas, because I am sick of trying and suffocating.

I was at the precipice of a Grinch-like meltdown, when I began receiving cards in my mailbox. Half of the cards came from cities I’ve never heard of, homes of other mast cell warriors. One of the cards contained a sticker that read, “Thank you for being.”

My shrunken kidney, two centimeters too small, did not grow when I read that, but I did feel a moment of comfort. The holidays have become painful reminders that everything is difficult or impossible for me: shopping, decorating, eating; socializing. The sticker gently reminded me I still matter, even if I can’t send Christmas cards on time anymore.

I considered putting an end to my shopping stress by just giving everyone on my list one of these stickers for Christmas. Then they would probably wish I had given them scent free deodorant. Holiday expectations are ridiculous.