MCAS Remission

In 2021, my mast cell activation syndrome (MCAS) symptoms went into remission thanks to a combination of first lines of treatment and doxycycline. In 2024, I began to decrease to successfully my medication without any MCAS symptoms. I am currently not taking medication for MCAS. While there is no known cure for MCAS, it is possible to feel better and return to doing what you love. 

MCAS treatment also eliminated my subluxations from Ehlers-Danlos syndrome (EDS) and symptoms of dysautonomia (POTS is one type). 

I don’t share all the details of the medications and doses I took because it is not helpful. In fact, copying someone’s MCAS medications and doses can be harmful. Every MCAS patient has unique set of mutations, symptoms, and risk factors, so there is no one-size-fits-all treatment. First lines of treatment are widely known and available. I wouldn’t be in remission if I hadn’t diligently gone through five years of treatment trial and error. 

Doxycycline has been known to help a small subset of MCAS patients due to its anti-inflammatory properties. Researchers are also studying doxy’s effects on hEDS. I do not recommend asking your doctor about doxycycline unless you have exhausted first, second, and third lines of MCAS treatment under the guidance of a knowledgeable specialist.

I have written many blog posts on remission:

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