Gift guide for mast cell disease

Like many people with chronic illness, my life is shaped by fatigue, pain, and mobility issues. However, mast cell “allergies” or triggers present unique challenges with life threatening consequences. As a result, most people are downright scared to give me a gift.

Well, technically everyone. On my birthday this year. I’m not still bitter.

So here is my gift guide for people with mast cell disease. Because I think we deserve gifts!

Practical gifts

  • Delivery services

Such as an Amazon Prime membership or Instacart membership. Leaving the house is difficult for people with mast cell disease. Delivery services allow us to avoid a myriad of triggers, while getting what we need.

  • Air filter

The most expensive item on my wishlist is an Austin Air Filter. I have one in my enclosed office at work, creating a safe space  for me to breathe.

  • Vogmask

I always carry a Vogmask in my purse to filter out chemicals, smoke, and pollen. It’s a little embarrassing to wear in public, but Vogmask has a variety of fun designs. It’s great to have more than one to match your outfit!

Self-care gifts

  • Epsom salt

Epsom salt baths are not only relaxing, but they can soothe muscles and reduce swelling. Most people with mast cell disease can tolerate pure Epsom salt (no added ingredients), although we need to be careful with water temperature (not too hot).

  • Vanicream

Winter is coming and every year it destroys my sensitive skin. Vanicream was developed at the Mayo Clinic, and is my personal favorite moisturizer.

  • Books, music, and movies

These gifts help us pass the time, escape our realities, and sometimes find inspiration. E-book readers are good for people who are sensitive to book smells or have trouble holding books.

Gifts of love and support

  • Cards with handwritten notes

Sometimes it’s easier to write the touchy feely stuff than say it aloud. I cherish cards much more having been through tough experiences with mast cell disease.

  • Homemade gifts

Particularly those we can admire from our couch or bed, where we spend most of our time. Consider incorporating our favorite colors, or quotes.

  • A framed photo or art piece

Remind us what we are fighting for! Beauty, inspiration, nostalgia.

Bonus gifts

  • Toys for pets

Most spoonies I know have pets that are incredible companions. We find joy in making our pets happy.

The no-no list:

  • Anything that smells
  • Anything containing health advice
  • Plants
  • Food
  • Clothes, beauty products, or jewelry
  • Gift cards to stores we cannot enter due to allergies or mobility issues. If you’re going to give a gift to an online store, please consider the shipping fee.

There are exceptions if you’re willing to also give your time and energy. For example:

  • Buy a few clothing items for the recipient to choose from and offer to return/exchange what doesn’t work. Soft, loose clothing is best.
  • Restock their favorite products. Take the time to find out exactly what they enjoy most.
  • Fulfill a specific request.

Whatever you do, don’t make us feel guilty if your gift makes us sick. Sometimes our triggers change and we are surprised as you are. Thoughtfulness, flexibility, and communication goes a long way with mast cell disease.

Please note, this is a general guide. Not everyone with mast cell disease will benefit from all of these gifts. Our triggers vary by individual.

So I am curious to know–what is on your wish list?

P.S. I am not sponsored buy any of the brands listed. Or anyone really. I certainly would like to be, if it doesn’t require selling my soul.

 

5 thoughts on “Gift guide for mast cell disease

  1. I don’t have mast cell disease, but I do have Lupus! My favorite gifts are soft clothes. It’s pretty much a winner, along with comfortable shoes. Anything that’s soft and comfortable. I joke that I’ve essentially become a cat. If it’s soft and warm, I want it!

    Liked by 1 person

  2. So much of this was absolutely spot on for me (not everything, because we’re all so different in the Mast cell world, right?).

    But thank you for posting this, because I never would have thought to ask for a delivery service when folks ask about gift ideas, and yet that’s such a perfect gift idea!

    Thanks again for putting this up!

    Liked by 1 person

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